New born babies shouldn't have to suffer

I would like to ask all my friends to please pray for Baby joshua. He was born 3 week ago and had to go straight to the operating room for open heart surgery. Joshua laid for 2 day with his chest wide open to prevent swelling. I was just informed that is health is deteriorting and may be facing open heart surgery once again.
We find it easier to stand on the side lines and realize that God has a reason for what is happeneing to joshua but when a parent in facing the possibilty of loosing a child it is very hard for the parents to accept that God his hands around the child and taking care of it